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November 13, 2018

New Consumer Voice Governing Board and Leadership Council Members

Consumer Voice is pleased to announce new members of the Governing Board and Leadership Council. New Governing Board members are: Brenda Gallant, Elizabeth Halifax, Catherine Hawes, Stephen Johnson, Tim Johnston, and Naomi Karp.  New Leadership Council members are consumer representatives: Jay Leavitt, Marion Harrison, and Sumitra Joy; long-term care ombudsmen: Anna Helm, Jane Brink, and Jennifer Williams-Woods; and policy/issue experts: Diane Carter, Laurie Mantz and Steve Levin.  Find the full list of Consumer Voice Governing Board members here and Leadership Council members here.

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Congratulations to the 2018 Consumer Voice Leadership Award Winners

The Consumer Voice is proud to announce the following recipients of its annual leadership awards.  Each of these individuals and organizations has worked tirelessly to improve quality in long-term care and preserve the rights of individuals receiving care and services.  
Congratulations to this year's award winners! The winners are:

Janet Tulloch Memorial Advocacy Award
Kristine Sundberg, President, Elder Voice Family Advocates
This award honors a citizen advocate, family caregiver or long-term care consumer who has worked directly with and for consumers to improve the lives of long-term care consumers.

Howard Hinds Memorial Award
Rachel Tate, Regional Director, WISE & Health Aging LTC Ombudsman Program
This award honors an individual who has effectively advocated for long-term care consumers on the local level.

Cernoria Johnson Memorial Advocacy Award
Heather Bruemmer, Wisconsin State Long-Term Care Ombudsman
This award is presented to someone whose work has had a national impact or is a model for national excellence and who exemplifies accomplishments in his or her chosen field.

Janet Wells Public Policy Leadership Award
Senator Richard Blumenthal
This award recognizes an individual or organization that has provided exemplary leadership in the public policy field in advancing quality of care and quality of life for residents receiving long-term care services.

Toby S. Edelman Legal Justice Award
Attorney General Brian Frosh
This award honors those who work through or with the legal system and go to extraordinary lengths to achieve justice for long-term care consumers.

Public Service Award
Human Rights Watch
This award recognizes an individual or organization whose work has profoundly expanded coverage and public understanding of long-term care issues.

Elma Holder Founder's Award
Sara Hunt, NORC Consultant
This lifetime achievement award honors a person whose life work exemplifies leadership in the field of long-term care reform.

For more information about the award recipients, read the press release and see the 2018 Consumer Voice Conference program.

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Proposed Rule for Revisions to Nursing Home Requirements of Participation Sent to OMB

The proposed rule for revisions to the federal nursing home Requirements of Participation has been sent to the Office of Management and Budget (OMB) for review.  The Office of Information and Regulatory Affairs (OIRA) has up to 90 days to review the proposed rule.  The review period may be extended indefinitely by the head of the rulemaking agency or the OMB Director may extend the review period one time for no more than 30 days.  Find the notification here.

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Save the Date: Giving Tuesday is November 27

#GivingTuesday is a global day of giving that harnesses the collective power of individuals, communities and organizations to encourage philanthropy and to celebrate generosity worldwide. Following Thanksgiving and the widely recognized shopping events Black Friday and Cyber Monday, this year’s #GivingTuesday will take place on November 27th and will kick off the giving season by inspiring people to collaborate and give back.

This #GivingTuesday, Consumer Voice will celebrate giving by Standing for Quality Care.  In 2018, Consumer Voice maintained focus on our goal of “living in a world in which all consumers of long-term care, services, and supports are treated with respect and dignity” through educational materials, conference sessions, advocacy and consumer training.  Your donation on Giving Tuesday ensures we can continue our advocacy and Stand for Quality Care.

This year, Paypal has pledged to match all Giving Tuesday contributions made on Facebook to charitable organizations.  On Giving Tuesday, November 27th, double your donation by giving via our Facebook fundraiser.  Like us on Facebook and follow us on Twitter @ConsumerVoices for updates on Giving Tuesday and for long-term care news and policy updates throughout the year.

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New National Guidelines Seek to Improve Access to Palliative Care for Individuals with Serious Illness

The National Coalition for Hospice and Palliative Care and the National Consensus Project for Quality Palliative Care has released new national palliative care clinical practice guidelines.  The guidelines promote improved access to palliative care, which is focused on giving patients and their caregivers relief from the symptoms and stress of serious illness, is based on need, not prognosis, and can be provided along with disease-focused treatment. The Clinical Practice Guidelines for Quality Palliative Care, 4th edition urges all healthcare professionals and organizations to integrate this specialized care into the services they provide to people living with serious illness.The guidelines also include tools, resources and practice examples to help with implementation. Find the guidelines here.

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NORC Webinar on Advocating for Residents with Mental Health Needs

Long-Term Care Ombudsmen: Join NORC Tuesday, December 4th at 3:00pm ET for a webinar entitled "Advocating for Residents with Mental Health Needs: What to do When a Resident Threatens to Harm Themselves or Others."  The webinar will discuss Ombudsman program advocacy for residents with mental health needs and how to respond when residents threaten to harm themselves or others.

Dr. Patrick Arbore, a nationally recognized expert in the field of elderly suicide prevention and grief services, will share warning signs, ways to promote better-informed and healthier communities, and resources and supports for Ombudsmen and residents suffering from inner loneliness, sorrow, stress, and anxiety. Following Dr. Arbore’s presentation Jamie Freschi, Illinois State Long-Term Care Ombudsman, will share her program’s policies, procedures, and tool that guides the program in responding to residents that talk about committing suicide. The webinar will conclude with a presentation from Natasha Belli, an Illinois program representative, who will share her experience working with a resident that has threatened suicide and the steps she took to support the resident.

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New Content Available for Talking Elder Abuse Communications Toolkit

New content is available from FrameWorks Institute and the National Center on Elder Abuse for the Talking Elder Abuse Communications Toolkit.  New content includes:

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Spotlight on Resources

Consumer Voice and the National Ombudsman Resource Center have a multitude of resources available online covering a wide range of long-term care topics. Visit the Consumer Voice and NORC websites to explore all the available resources.  Check out this week's highlighted resource:

NORS Freqeuntly Asked Questions

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In this Issue

New Consumer Voice Governing Board and Leadership Council Members

Congratulations to the 2018 Consumer Voice Leadership Award Winners!

Proposed Rule for Revisions to Nursing Home Requirements of Participation Sent to OMB

Save the Date: Giving Tuesday is November 27

New National Guidelines Seek to Improve Access to Palliative Care for Individuals with Serious Illness

NORC Webinar on Advocating for Residents with Mental Health Needs

New Content Available for Talking Elder Abuse Communications Toolkit


Spotlight on Resources


Did You Know?

Charitable contributions made directly from your IRA annual distribution (for individuals age 70.5+) may be tax-free. Ask your financial advisor for more information.

Find more ways to contribute to Consumer Voice here.


Reminder: Oppose the Rollback of Emergency Preparedness Rules - Submit Comments to CMS by November 19

There is still time to submit comments to oppose the rollback of emergency preparedness rules.  The proposed revisions could make nursing homes less ready when disaster strikes and subject residents to greater danger, and even death.

CMS needs to hear from all of us that this proposed regulation is not acceptable!  Click here for more information on the proposed rules and how to submit comments.

Thank you to all those who have already submitted comments!


Calendar of Events

Tuesday, November 27: Giving Tuesday

Thursday, November 29: Promising State Strategies for Working with Providers to Meet with HCBS Settings Criteria & Promote Optimial Community Integration, 2:00pm ET, Part II of ACL Webinar Series

Tuesday, December 4: Advocating for Residents with Mental Health Needs: What to do When a Resident Threatens Harming Themselves or Others, 3:00pm ET, NORC webinar for long-term care ombudsman

Thursday, December 13: After Receiving Final Statewide Transition Plan Approval: Tackling the Ongoing Systems-Change Work that Remains, 2:00pm ET, Part III of ACL Webinar Series


Join the conversation and follow us on social media!

Last Week's Most Popular Post:

Wednesday, November 7:
Last Friday, the Minority Staff of the Senate Finance Committee published a report "Sheltering in Danger," which concluded that current federal emergency preparedness standards are too weak.

Last Week's Most Popular Tweet:

Wednesday, Novmeber 7:

Minority Staff of the Senatoe Finance Committee report "Sheltering in Danger" concluded that current federal emergency preparedness standards are too weak


Long-Term Care Resources & News



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About The Voice

The Voice is a weekly e-newsletter, published by the National Consumer Voice for Quality Long-Term Care. If you do not wish to continue receiving this publication, please unsubscribe below. Your contributions and comments are welcome and should be sent to info@theconsumervoice.org. Copyright © 2018.

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Consumer Voice is the leading national voice representing consumers in issues related to long-term care, helping to ensure that consumers are empowered to advocate for themselves. We are a primary source of information and tools for consumers, families, caregivers, advocates and ombudsmen to help ensure quality care for the individual. Consumer Voice's mission is to represent consumers at the national level for quality long-term care, services and supports.


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